29 FEBRUARY is Rare Disease Day

Raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers.

HGSA will be represented at a Rare Disease Day Parliamentary Event hosted by the Parliamentary Friends of Rare Diseases.

For full details of events and to download promotional materials see: https://www.rarediseaseday.org/

Watch the 2024 Rare Disease Day Official Video